Friday, February 28, 2014


 Today is rare disease day and we are SO thankful for this rare girl in our lives! She has changed the way we look at the world and we so are thankful we were chosen to be her parents!
* Only 1 in 43,000 people are diagnosed with KFS and sprengels deformity affects less than 200,000 people in the US.  

I hope she never stops grabbing her toes. :)

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